{"id":260,"date":"2013-03-06T21:02:53","date_gmt":"2013-03-06T21:02:53","guid":{"rendered":"http:\/\/www.findthomas.net\/blog\/?p=260"},"modified":"2013-03-06T21:02:53","modified_gmt":"2013-03-06T21:02:53","slug":"transparency-of-usage-of-personal-data-the-need-for-a-hipaa-like-regime","status":"publish","type":"post","link":"http:\/\/www.findthomas.net\/blog\/2013\/03\/06\/transparency-of-usage-of-personal-data-the-need-for-a-hipaa-like-regime\/","title":{"rendered":"Transparency of usage of personal data: the need for a HIPAA-like regime"},"content":{"rendered":"<p>Ray Campbell hits the ball out of the park again with his awesome suggestion in his blog: we need a <a title=\"HIPAA-like regime for personal data\" href=\"http:\/\/www.rac3.com\/blog\/\" target=\"_blank\">HIPAA-like regime for the privacy of personal data<\/a>. \u00a0As a mental exercise, Ray has gone through the HIPAA document and substituted\u00a0\u201c<em>individually identifiable health information<\/em>\u201d to \u201c<em>individually identifiable personal information<\/em>&#8220;. The <a href=\"http:\/\/www.rac3.com\/wp-content\/uploads\/2013\/03\/Thought-experiment-Privacy-Rule-edits.pdf\" target=\"_blank\">red-lined doc<\/a> can also be found on his site.<\/p>\n<p>The at the heart of his proposal is the notion of shifting the thought paradigm from the person as the absolute owner of his\/her personal data to one where the person is seeking the <em>right to know<\/em> about <strong>who<\/strong> has his\/her personal data, <strong>how<\/strong> they obtained it, <strong>what<\/strong> are they doing with it and <strong>to whom<\/strong> have they sold the data (the 4 questions).<\/p>\n<p>Following on from Ray&#8217;s post and from\u00a0<a title=\"New Deal on Data\" href=\"http:\/\/hd.media.mit.edu\/wef_globalit.pdf\" target=\"_blank\">Professor Sandy Pentland&#8217;s view on the <em>New Deal on Data<\/em><\/a>, I believe there should be a new market in the digital economy where individuals can meet directly with buyers of their personal data, and where individuals can opt-in to make more data about themselves available to these buyers. \u00a0Cut out the middleman &#8212; the big data corporations that are not contributing to the efficiency of free markets.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Ray Campbell hits the ball out of the park again with his awesome suggestion in his blog: we need a HIPAA-like regime for the privacy of personal data. \u00a0As a mental exercise, Ray has gone through the HIPAA document and substituted\u00a0\u201cindividually identifiable health information\u201d to \u201cindividually identifiable personal information&#8220;. The red-lined doc can also be <a class=\"more-link\" href=\"http:\/\/www.findthomas.net\/blog\/2013\/03\/06\/transparency-of-usage-of-personal-data-the-need-for-a-hipaa-like-regime\/\">Read More<\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false},"version":2}},"categories":[17,16,18,8],"tags":[],"class_list":["post-260","post","type-post","status-publish","format-standard","hentry","category-mit-media-lab","category-nstic","category-personal-data","category-privacy"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p2hk6w-4c","_links":{"self":[{"href":"http:\/\/www.findthomas.net\/blog\/wp-json\/wp\/v2\/posts\/260","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.findthomas.net\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.findthomas.net\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.findthomas.net\/blog\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"http:\/\/www.findthomas.net\/blog\/wp-json\/wp\/v2\/comments?post=260"}],"version-history":[{"count":11,"href":"http:\/\/www.findthomas.net\/blog\/wp-json\/wp\/v2\/posts\/260\/revisions"}],"predecessor-version":[{"id":271,"href":"http:\/\/www.findthomas.net\/blog\/wp-json\/wp\/v2\/posts\/260\/revisions\/271"}],"wp:attachment":[{"href":"http:\/\/www.findthomas.net\/blog\/wp-json\/wp\/v2\/media?parent=260"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.findthomas.net\/blog\/wp-json\/wp\/v2\/categories?post=260"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.findthomas.net\/blog\/wp-json\/wp\/v2\/tags?post=260"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}